Exploring the decision-making process in stoma surgery for adolescents with inflammatory bowel disease: a thematic analysis

McCusker, Alison (2015) Exploring the decision-making process in stoma surgery for adolescents with inflammatory bowel disease: a thematic analysis. D Clin Psy thesis, University of Glasgow.

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Abstract

Background: Inflammatory Bowel Disease is a life-long condition which involves inflammation of the gastrointestinal tract. Unfortunately, a large proportion of people who do not respond to medication have to undergo surgery. This involves the removal of an inflamed section of the digestive system which may require the creation of a stoma. Making the decision to have stoma surgery can be distressing and problematic, particularly within the adolescent population. Objectives: The aims of this study were to explore the decision-making process and pre-operative experiences involved in stoma surgery for adolescents with Inflammatory Bowel Disease. Design and Method: A retrospective qualitative design was used. Recruitment used purposeful sampling and semi-structured interviews were completed and transcribed. Data were subject to Thematic Analysis. Participants: Sixteen adolescents with Inflammatory Bowel Disease who had undergone stoma surgery were invited to participate in the study. Seven participants were involved in the final sample (at time of interview, age range 13-18years old). Results: Three super ordinate themes emerged from analysis and an analytic narrative was constructed under the headings ‘Living with Inflammatory Bowel Disease’, ‘Journey to Surgery’ and ‘Support Network’. Conclusions: The decision-making process appears to be most successful when an adolescent has time to prepare and is provided with appropriate information to ensure understanding in order that they are able to take a balanced perspective and make an informed decision. The involvement of a peer appears crucial throughout this process by enhancing mutual understanding.

Item Type: Thesis (D Clin Psy)
Qualification Level: Doctoral
Keywords: Key words: Adolescents, Stoma, Surgery, IBD, Experience
Subjects: B Philosophy. Psychology. Religion > BF Psychology
Colleges/Schools: College of Medical Veterinary and Life Sciences > Institute of Health and Wellbeing > General Practice and Primary Care
Funder's Name: UNSPECIFIED
Supervisor's Name: Jackson, Dr Alison
Date of Award: 2015
Depositing User: Miss Alison McCusker
Unique ID: glathesis:2015-6676
Copyright: Copyright of this thesis is held by the author.
Date Deposited: 22 Sep 2015 14:13
Last Modified: 24 Sep 2015 13:42
URI: http://theses.gla.ac.uk/id/eprint/6676

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